Tag Archives: suffering

The Familiar Abyss

Posted on by
4

“What are you scared about the most?”

It was a question that cut to my core. Innocuous, it would seem, as something that we all ask of those that we know; but given the right context and timing, it cut to my core.

“So, what are you scared about the most?”

It’s a pretty normal question, a conversation starter, or a “getting–to-know-you” group question, but this time, because it was asked the evening after I had received the diagnosis of the presence of a moderately active cancer in my prostate, it was particularly pertinent. That I received this news two days after we commemorated the first anniversary of Ngaire’s passing wasn’t lost on me either.

After the initial blow subsided, the clouds cleared and I, again stood looking into this seemingly bottomless abyss of the unknown and unfriendly. It seemed strangely familiar and not quite as fearful as I remembered it. In fact, as I talked to a friend about it later in the day, it dawned on me that there was actually treasure to be found here. However, I will have to climb down into this hole; at some point, I will have to leap across the gap, and I will get to the other side.

There is a pretty good success rate with this type of cancer. For the sake of those who love me, I’ll do all I can to make sure that I’m in the positive percentage. Nonetheless, it is quite sobering knowing that I have “the worm” inside me: that which could end my life is resident within.

The reality that we tend to ignore rather well in our society, is that we are all terminal and, as C.S. Lewis said, “Death has a way of focussing one’s attention.”

So, what am I scared about most? Oddly enough, it’s not that I might die, or the numerous unpleasant procedures involved; it’s my mental health.

Since a couple of years before Ngaire died, I found myself gradually sliding from being my normally robust, buoyant self into being frequently depressed, anxious and fearful, particularly through the long hours of the night. To even contemplate the possibility of entering that darkness again, having been free of it for many months now, is more frightening than anything else.

As always, there is tremendous strength drawn from the love of my friends and my boys; I am grateful beyond words.

Well over a year ago, I committed to document Ngaire’s journey towards a lung transplant; within a few months she was gone, having never made it that far. The documented journey became the path of grief and so many aspects of relationship and love lost, all the way through into the open space.

So now it’s time to head off into the woods again – pop on the boots, tighten the belt and strike up the hiking song……whatever. I may not be the Happy Wanderer, but I hope to walk this path with a great degree of peace. Thank you to those who are walking with me.

Stay tuned for updates.

Tell Me When….

Posted on by
10

This piece has been a long time coming, with lots of revisions and changes, because in it, I’m not just talking about me and my feelings and experiences, but also of the feelings of those around me – at least to some extent. I want to treat them gently and with respect. So here goes:

I was talking to a close friend the other day about this whole process: grief and healing, loss and recovery. He said something that I had been suspecting but as I have never been through this before (at least not at such an intimate level as having lost my wife) have been wondering if I should expect something more.

He said that he thought that the way I had engaged in my grief, embracing the great variety of issues and emotions, then processing them through my writing, had expedited the whole experience. That’s how I feel.

Another friend told me that I had “grieved well.”

“Processing” is a clinical word for such an organic, spiritual progression; and progression is what it is, as I look back over the months. I am now at a place where I can look at Ngaire’s things with a sense of love and gratitude rather than heartache. I know that there will always be moments that will overwhelm; I’ve seen that in others, sometimes even after many years.

As you’ve probably deduced from reading these blogs, I talk to people a lot; I like to have “sounding-boards”: people whom I trust to not only reflect back to me what I am saying – to help me see it more clearly – but people who will also give me another perspective that I may be missing.

In a different conversation to another friend, I said that I felt that it seemed much longer than the nine months since Ngaire died; in looking back and reading my blogs again, it really felt like years. In fact, if I had to put a number on it, I’d say, about two and a half years.

I have started going through her things now, to pass them on to the people that I know she would love to have them, to keep some for my boys and their prospective partners, and to keep some myself. I have had help, but it has been an almost pleasurable experience.

I am a little surprised at how quickly this time has arrived. There is none of the dread that I had been anticipating, none of the melancholy or even grief. I have some sadness, but also some joy in knowing that I will be sharing some of her things with those she loved.

I have heard stories of spouses who never address these things, who are perpetually in a state of waiting for their loved-one’s return, so the slippers, the dressing-gown, the favourite shirt, dress, jacket, earrings….whatever, remain for the owner to come and step back into them. What I am saying is that I now know that she is not coming back. I referred to this in my last blog regarding dreams and how they were an indicator of me coming to terms with her not being here. Now that I know, I will be doing what needs to be done.

 

As usual, I have been doing a lot of pondering; I have wondered about this whole epoch of “moving on” i.e. stepping into the next phase of life, as it were, whatever that looks like. These are words that run through my mind: newness, uncertainty, promise, apprehension.

In my last blog I wrote of the cost of being in this place now, to me personally, and to my family. Of course, I realise that it is not helpful to stay in that headspace.

Some years ago, Ngaire and I invested significantly in property in Brisbane. Rather than an investment, it turned out to be a massive burden that we carried for years, which ended up costing many times more than what we had invested, just for us to eventually be free of it. But, we couldn’t stay in the pain and loss of that experience. We had to move on and leave it behind.

While the analogy is inadequate, I feel that there is a clear sense of moving on now; that it is not helpful to remain in grief and loss, nor do I want to any more.

I have even noticed a difference in my response to others when they ask how I am. Normally, it will be something like, “I’m doing fine, thanks,” or “OK.” Now, I actually find myself saying, “Good.” I’m pretty happy about that.

This whole process has, however, been intense; those of you who read these posts regularly will know that I have embraced the grief, engaged in each issue and experience and not let go until I have wrung every last drop from it.

I spoke of conversations earlier. Some folks that I know who are church pastors in New Zealand were part of a recent weekend away with my church community. Hamish told me about a lady in their church whose husband had died some time before. She had met another guy whose wife had also died under similar circumstances. They ended up together and, as part of their commitment to each other, gave permission to have their own individual “space” around birthdays, anniversaries, etc., that related to their lost partners. I thought that that was beautiful and showed a depth of understanding and love that can only be appreciated by someone who has walked the path; someone who is not intimidated by the intimacy that you had with another, who is brave and loving enough to allow such freedom.

So, sitting in this classroom of life, looking out at all the students who are parts of me and my questions, I can see a boy about three rows back, with his hand up, a quizzical expression on his face, along with a slight sense of embarrassment as I give him permission to talk.

“Sir, does that mean you are moving on?”

“Good question, young man,” I cautiously respond.

This is an area that Ngaire and I touched on, though not in any depth. She recognised that, should she not make it through, I was still young enough to consider life with someone new.

Her illness lasted over many years, and the possibility of her death was never far from my thoughts; in my own heart, I had made a commitment long ago, that if Ngaire died, I wouldn’t even consider a relationship with someone else until my boys were out of school; that would have been an unfair stress that young hearts may not have been able to cope with. As I’ve mentioned before Eddy – our youngest – finished up at school just a few days before Ngaire died.

Since then, I have laid out the journey on these pages: the various aspects and issues associated with the path of grief and loss; I have wrestled and wept, struggled and somehow come through. Now, I stand here on open ground; the cloud has parted, the sun is shining and there is hope on the road ahead. I feel good, not just OK. I don’t doubt that there will be moments which will still overwhelm from time to time, but generally I feel strong and at peace. There is, however, a consideration that I find a little unusual, possibly even perplexing.

I have noticed over the years that part of this process of “moving on”, specifically about beginning another relationship, is almost a taboo area, about which many people have strong opinions. I have seen people, including myself, who have been hurt and angry when someone close has begun a relationship with another, sometimes within a time-frame that may be considered too soon. From my pondering, I throw out a couple of things to consider:

In looking at my own judgement of others in the past, I realised that, even though it may not have been conscious, I had made an assumption of, “How can they just forget their wife/husband like that?” It is almost as though I had felt them to be discarding or cheating on their spouse.

One thing I hadn’t allowed, is that the journey of the bereaved person is one of which I had no context to help me even remotely understand. The depths plumbed by a grieving spouse are simply beyond those who haven’t been there. Plus, how that person deals with and processes the pain of their life is entirely their business and I have no right to judge them.

For me personally, I know that I will always carry my love for Ngaire with me and, like the couple of whom I spoke earlier, hope that this love be respected in any future relationship.

Of course, people who actually have a right to be concerned or emotionally jarred are those who are closely related e.g. children and siblings of the one who has died. A father or mother beginning a new relationship can be hurtful to a child, if not handled properly – even years down the track. So I think that it is reasonable to expect, particularly if close relatives or friends are involved, that there be sensitivity and lots of conversation.

My boys for instance would and should be the first to know; in fact, I would not consider moving forward in another relationship without them being OK about it themselves. Which brings me to my next deliberation: perhaps some people may be upset or judgemental about a bereaved person moving on, because they have not been able to process their own grief, or have avoided visiting the pain. I suspect that some reasonably close to me may be in that situation and, in my pondering have realised that, apart from a gentle conversation, there is nothing I can do about it. I cannot process their pain for them, nor do I believe that it is my responsibility to wait until they can cope.

It’s a weird, new world and in some respects, this whole process is a metaphor of life, which teaches me that even if I walk in love, there will be pain for others, no matter how sensitive I am. We are each responsible for our own lives, and often our judgement of others hides a deeper need within ourselves.

If all of us are to move on, we have to deal with the pain gently, but thoroughly and leave it behind. Coincidentally, I read this quote last night:

“Don’t get rid of the pain until you’ve learned its lessons…hold the pain of being human until God transforms you through it. Then you will be an instrument of transformation for others.” – Richard Rohr

For that to happen requires us to look into the pain, not as our enemy, or something to be shunned, but as that which will help us to live more fully, more alive. I am convinced that those who walk through the pain are those who know true joy. I think that that is why, when someone asks me how I am, I can now say, “Good.”

The Transcendence of Hope

Posted on by
Reply

You will have read that we were just in California for Christmas. Eighteen months ago, Ngaire and I visited Bethel Church in Redding, Northern California. For Ngaire, it was her third visit. Many thousands of people have experienced healing through visiting this place; of this I have no doubt. Ngaire herself, as I have mentioned before, after her first visit to Bethel, went from being highly symptomatic to symptom-free for the eighteen months following. However, after the two subsequent visits, there was no difference. In fact, it was after our last visit that she began to require oxygen therapy twenty-four hours a day.

So why wasn’t she healed? I don’t know. That’s not what I’m writing about today. I will share some thoughts in the future, though.

As the trip was a kind of pilgrimage, it was, almost entirely, contemplative; we read much, talked much, absorbed much, stepped across the “physical divide” much and listened to music, some of which we had just bought.

There was a palpable sense of otherworld-ness as we left the town, escorted down the long driveway of Bethel Church by a bald eagle floating parallel to our car. The new music that we had playing filled us with a sense of hope and seemed to confirm our feelings that healing was imminent.

Yesterday I played that same music for the first time. Instead of melancholy, it again filled me with a sense of hope. Part of me thought that that was quite bizarre. After all, didn’t that hope disappoint? Not only was Ngaire not healed, but she became rapidly worse and continued so until she died, twelve months later.

I think that like many of us, I have had a belief that hope is what you do, so that when something happens to us that is contrary to what we had hoped, our hope is therefore diminished, not to be trusted, or even destroyed. Ngaire died, despite our best hopes; but I think I’m starting to see that our hopes are not Hope.

What if Hope has a life, strength and potency all of its own? What if Hope is something on which we draw, rather than something we whip up or project onto our future as a kind of semblance of our faith?

A few blogs back I spoke of some of the things that I have learnt about faith. One of them is that faith is not about having an expected outcome. While we were away over the Christmas period, I heard a young man say that there is no such thing as an unanswered prayer. His statement got me thinking again about how we have made so much of what we believe into a set of mantras so that we can put God into a manageable framework that helps us to keep things under control and to bring us, hopefully, an expected outcome. If we don’t do that, then God dwells, at least partly, in the unknown and mysterious; this doesn’t work for us.

So our theology becomes a series of “therefores” e.g. God wants to give me good things, and he is a loving father, therefore there is no such thing as unanswered prayer, because he’s just busting to bless me – a little simplistic perhaps, but the problem with so much of what I have learnt is that it is part of this derivative system of belief: the great therefore.

The real issue here is that, depending on what form of logic you use, you can make virtually anything mean what you want it to mean, rather than necessarily what it is saying; just read Plato. But I digress…..kind of…because I was talking about hope.

In the oft-quoted chapter thirteen of the letter to the church in Corinth – a favourite for virtually anyone’s wedding – Paul talks profoundly about the nature of love, that it is, in its purest form, entirely selfless. He then wraps up the chapter with, “These three remain: Faith, Hope and Love, but the greatest is Love.”

He might as well have said, “When everything you believe is boiled down, this is what you’re left with: Faith, Hope and Love.” And it seems that Love is what makes sense of it all.

When I have thought of love, it has usually been associated in my mind and heart with a feeling, something that comes from within, establishing and/or confirming an emotional relationship with another person. But what if those feelings are simply the “exhaust” of a far greater engine? Of course, this is not a new thought with regard to love; greats have shared their wisdom for thousands of years, and the great commonality is that love – real love – is entirely selfless. It is not about what I get; it is about what I willingly lose for the sake of another. In a marriage or life partnership, the beauty in that mutual sacrifice is the gateway to oneness.

Love then, is a way, not a feeling.

So, as I ponder Hope and how it still makes its presence felt in my life after being so disappointed, it really doesn’t make sense unless seen in the context of the way of love.

Maybe people could say that I’m trying to find reasons why my beloved Ngaire died thirty or forty years before her time.

Possibly, but perhaps there’s another way of looking at it. C.S. Lewis, in A Grief Observed, said, “Nothing will shake a man…out of his merely verbal thinking and his merely notional beliefs. He has to be knocked silly before he comes to his senses. Only torture will bring out the truth. Only under torture does he discover it himself.”

It is no longer good enough for me to believe a self-serving theology of heaven and prosperity – which, one would think, includes the ongoing presence and love of my life partner – no matter how worthy, if God is not on the same page.

Again, as Lewis says, “My idea of God is not a divine idea. It has to be shattered from time to time. He shatters it Himself. He is the great iconoclast. Could we not almost say that this shattering is one of the marks of His presence?” And again in the same vein, “I need Christ, not something that resembles him.”

I guess this means that I’m discovering the transcendence of hope, because the way of love is transcendent, and that is what makes sense of hope; it is not only superior, but outside of space and time, with a strength and nature of its own that is not dictated by the whims of our desires, no matter how strongly we feel, no matter how painful the path.

 

1. All C.S.Lewis quotes are from A Grief Observed – First published by Faber and Faber 1961

The Path of Healing

Posted on by
5

So, now we are back home and life has resumed as normal. North-American Christmas has given way to the beautiful post-Christmas summer of Sydney: fresh, seasonal avocadoes, mangos and watermelon, along with the smell of gardenias, the ubiquitous barbecue, cold drinks and sun on skin.

Although we bathed in the peace of our time away, there is a great sense of home and rest in Sydney at this time of year; everyone is in a relaxed mood, the air is warm, the traffic light, and it’s all about relaxing and spending time with friends, for as long as we can make it last.

I love this time of year here.

Being back has had me reflecting, in a peaceful way, on the journey of the past nearly-six months; I have written about grief and all of its facets – at least, what I have been able to identify within the context of the relationship that Ngaire, our boys and I shared; I have had marvelous conversations with friends and family – life-filled conversations – that have gone deep and helped bring a measure of peace and understanding; I have sat to write many times, having experienced an aspect of pain or loss, and in the engaging, found profound, unexpected truth.

Though I don’t anticipate that this journey will ever fully end, I have found myself in a different headspace lately; some of the things of which I have been apprehensive have taken on elements of peace, and become building-blocks for the future: unexpected but deeply appreciated.

Today is Ngaire’s birthday. Birthdays in our family would normally be mini festivals that stretch over at least a few days; this was something that Ngaire instituted and perfected – an honouring of a person that would leave them in no doubt that they were loved. This practical and caring demonstration of my love is what I am unable to give today; but this now leaves me with melancholy more than pain.

Now, most of the time, when I think about Ngaire, I see her smiling, vibrant and full of life. I don’t know how or when that happened, but I am glad for it, and in many ways, feel that it happened in spite of me. This brings me to what I have really been thinking about.

It would seem pretty obvious that grief is a process that the bereaved person goes through and, no matter how well supported they are, is quite a solitary journey. It occurred to me recently however, that Ngaire has been my almost-constant companion through this process. I am coming to understand that how I thought of her through this process is an indication of what I was going through. For example, throughout much of this period, my mind has gone over and over her last weeks, particularly her last day. The pathos of her frailty and weakness has at times been overwhelming in my mind. It has screamed at my ineptitude at not being able to save her and laid bare the inadequacy of my support, provision and care for her, all of which laid an axe to the root of my perception of who I was, as a man and husband.

Over time and particularly through our “time of peace” away over Christmas, I have been able to let go of many of these feelings. I know that there was nothing that I could have done, and now my heart is beginning to agree with my head. Now, I think far less of the tragic moments before her death and more of the happy, healthy, vibrant girl that Ngaire was for most of our life together.

People often say to someone who is bereaved, “remember the happy times – let them be a strength to you.”

I get the sentiment, but it seems to me that it would require a “short-circuiting” of the whole process of grief. One thing that I have been discovering on this journey is that the engagement is everything. Pain can be a good thing if we, with our limited, pain-minimising Western understanding, can clasp hands with our inner life and walk through the pain. It’s the old in and through.

I know there are different kinds of loss; I can’t imagine – or perhaps I can – of losing a child or another close loved one through sudden, tragic circumstances; I couldn’t begin to fathom the pain of those who lose many members of their family in a car accident, and find themselves alone in their anguish.

This I do now know: grief is the path to healing; if I do not engage in the pain and walk through it, I will become misshapen by it. I also believe that a key is the need for me to continue to give as well as receive love; in the giving, the flow of life is restored, little by little.

I don’t pretend to undertsand this whole thing; that mysterious, peaceful time overseas has brought restoration deep within, but I don’t know how or why. It is as if God, has, as I mentioned in the last blog, tied it all up and said, “Here, tuck that away. Don’t be afraid to refer to it as often as you want, but it’s gift to you will now be peace.”

Ngaire is still my companion, but now there is peace and, dare I say, even a modicum of joy for who she was. I still miss her, every day, but now I see her smiling. She was also a twin, so today is her beloved sister’s birthday too. Everyone has their journey, so we need to tread gently.

Image

Pictures

Posted on by
10

I was having coffee with some friends, when one said to me, “I like the beard; you should keep it.”

I hadn’t consciously been working on a beard. When I got home, I went to check it out. As I stood before the bathroom mirror, I realised that I hadn’t spent any time looking at my face recently, almost as if I had some kind of hesitance in engaging the eyes, for fear of what I might see there. I had become a little unkempt, though not too bad – kind of like a front lawn that had grown a little too long and with edges in need of a trim. Normally, I would keep things under control, but I had clearly been preoccupied with something. I say “something” because it’s not what you might think.

While my loss of Ngaire does account for a huge part of my thought life in a day, I am still living life: going to work, cooking meals, washing clothes, seeing friends, laughing and making small talk. What the unkempt man in the mirror underlined was that normal had, in many instances, become something that I had to make a conscious decision to engage, e.g. “I think I’ll make dinner now”, or “maybe I should have a shower before I go to work.”  It is almost as if the chip that looks after routine has a malfunction and that part of my brain is floating in cyberspace somewhere – preoccupied with floating! Maybe that’s why the unexpected has such a sudden impact on me emotionally.

I’ve talked about this before; it’s common to all who grieve and understood by most. We hold it together most of the time as we continue the job of rebuilding and working with the new shape of our lives. Then something appears – usually entering through our senses, catching us unawares – that folds space and time so that we are instantly transported back by a smell, a picture, or a sound. There have been many such moments over the last four months but the other day, one in particular showed me another aspect of this journey.

Most of us have a presence on Facebook; for those who don’t, I hope you will bear with me. Ngaire still has a presence there and I see no reason why that should ever change. I had actually made a decision not to visit her Facebook pages yet, in the same way that I have decided not to sort through her clothes, personal items, etc. It’s too confronting, too painful still; but I know that the time will come.

Remy, my precious twenty year-old son, who is living overseas, did go to her Facebook pages, to look through the pictures that she had put up there, many of which were tagged with my name. When Remy “liked” them, or made a comment about them, I was notified on my phone, and unwittingly drawn into reading her comments about pictures of me and of our family.

Ngaire nearly always had something good or encouraging to say about everyone she knew. That was one of the things that she did well, but when I read the comments of love and adoration that she had for me in these pictures, I was undone. In instance after instance, I had reinforced to me the one central, glorious, beautiful thing that was gone from my life – her love for me.

As stupid as it sounds, I hadn’t fully realised that it’s not just her presence, her touch, conversation, smile, laughter, or any number of things that relate to her being present that I miss the most; but the love that captivated me, helped sustain me and made me feel that I could do almost anything, was gone – relegated to the past – and the loss is palpable.

I know that there are those who will say that her love lives on in me and the boys and in the hearts of those whom she loved; I understand that sentiment and it is true to a point, but the active adoration with which she endowed me, that was central to the peace of my heart and my home and helped shore up my character, is no longer a vibrant life-force in my world – in my boys’ world. This is loss and, as I ponder, it is also key to understanding the rebuilding. Now that I see the keystone is gone, again I sit pondering the precarious nature of this house in which I dwell.

If only we realised how central love is; it is the stuff of life. Without it, we merely go through the motions. It is that which holds life together, makes the weak strong and the poor, rich.

I am deeply grateful for the love of my boys, my friends and my family. Without that, I can’t think of one reason why a person would want to keep on living. With it, I have the mortar to rebuild.

Rehearsal

Posted on by
2

Ngaire’s battle with lung disease stretched out over a period of more than twenty years – over one third of her life; and I had the privilege of walking with her through it all. For the first seven there was hope that it may resolve itself, but thirteen years ago, the diagnosis turned sinister – to pulmonary fibrosis – which is always terminal.

Over those years, my role was to love, support, care for, encourage and enable her to walk the path towards wholeness. We looked for healing, from the supernatural to the intensely natural: prayer, whole foods, herbal remedies, naturopathy and everything in-between. Because the prognosis was terminal – usually, at best three to four years – perhaps, in retrospect, there was a measure of healing in some of those. After one visit to Bethel Church in California in 2005, where Ngaire was prayed for, she was completely symptom-free for eighteen months. Two subsequent visits, however, yielded no such fruit physically. All of that is to help paint the picture that this was a long journey, full in many varied and challenging ways.

One of the things that we learnt early on in the process was that the medical profession wasn’t very good at giving you bad news. In many ways, they were often quite brutal and many times we found ourselves clawing our way out of a pit of despair (I should say, however, that Ngaire’s doctor for the last three years was an exception to this experience; we found him hopeful and supportive, even when things went sour).

I found myself needing to be Mr Positive because of this, always pointing the way to the positive aspects, always trying to provide her with an anchor point for hope. The reason for this is the real help that hope provides, emotionally, psychologically and physically. The alternative – despair – soon carves a slippery slope to destruction in the often desperate heart of one with a terminal sentence. Even in her last thirty-six hours, Ngaire hoped and believed that after her sedation and intubation, she would wake with new lungs from a transplant. I am relieved that that was in her heart rather than hopelessness and despair.

Of course, my own personal journey was different. I purposed to maintain her hope, but would, myself, at times, visit dark places, writing of hopelessness and the feeling that my days were a rehearsal for what life would be like without her. This would happen particularly when she was convalescing elsewhere or on one of her several hospital visits. Without her presence in the house, the whispers would often be that my actions of preparing meals, doing washing and ironing, making lunches, organising cleaning rosters amongst the boys, were all practice for the future when she would no longer be with us.

I couldn’t talk to her about this, which is more difficult than I can tell. In almost everything, Ngaire and I would seek each other’s opinions, thoughts and feelings. I think the word that I used in an earlier blog was symbiotic. Since we remarried in 1991(for those of you who don’t know, we were separated and divorced for five years – that’s another blog), our marriage was totally different. We had almost a singularity in our approaches to things. We would use ineffectual words like “team” and “agreement” but it was much more. I cannot tell how many hundreds of times I would pick up the phone to call her and she would be calling me, and vice versa; we would often be jointly thinking of the same things or people and begin to speak about them together at the same time.

Much of this kind of thing is not uncommon in close marriages, but we had fought some hard-won battles to bring us to where we were. Part of our remarriage vows said, “I give my life to you as an open book”. Now, here I was with all of these feelings of hopelessness and despair, and I was unable to tell her, because I knew that it would be destructive in her physical battle. One of us needed to be paddling the boat, and that was usually me. I have learnt that this is often what happens to a carer. I saw it in my own father as he took care of my mother through many years of Alzheimer’s. Despite my urging he found it difficult to open up about his struggles – which were deeply evident in his demeanour – and mostly kept it bottled-up, to his and our great detriment; he died shortly after mum. However, I am immeasurably grateful for those few friends in whom I could entrust the deep, dark things, who supported, prayed and help strengthen me for the road.

So where does faith sit in all of this?

Over the course of Ngaire’s illness, faith changed shape enormously. In fact, to enlarge the metaphor, it became an almost unrecognisable monster at times, as we waded through the mud of “unlearning” what faith is.

As an aside, I am bemused by atheists, some of whom are my friends, who in their own “evangelism” presume that I, or others who think similarly, have not grappled substantially with these issues of the existence of God. It is arrogance to presume this and flawed thinking to not allow another possibility. What is the difference between that and a rabidly fundamentalist Christian? I digress.

Let me tell you some of the things that I believe I have discovered about faith:

  1. It is not about me having an expected outcome.
  2. It does not dictate that I must badger God until he gives me what I want.
  3. It is not about having an expectation that everything will be peachy.
  4. God is far bigger than any box that I may create for him or indeed, any understanding to which I may come.
  5. God can do things any way he likes.
  6. Suffering is an integral part of the journey to joy.
  7. It is O.K. to doubt.
  8. Faith is purified more by unanswered prayers than answered ones.
  9. Yes, I am loved.

I was talking earlier about Ngaire’s and my closeness. I don’t want to give the impression that it was all sweetness and light. To reach the gold you have to dig the dirt; at times we could be downright abrasive with each other: I have some memorable journal entries! But, generally….mostly…..entirely…we were deeply in love.

I wrote this about eighteen months ago, after we returned from California; Ngaire had taken a downturn and was staying at our friend, Moira’s, place.

It is the Oneness

Unwell, she convalesced in another place

Alone, deep in the night,

I stirred beside her, felt her warmth

And the air move past my face from her breath,

Tenderly, we enmeshed the arms and legs

Of our souls in gentle embrace,

And communed.

From the other possibilities of mind-time,

I called myself to reason, lying suspended,

Sliding around consciousness.

That reason again challenged life

That this is a dream,

That she is not here,

That I am alone.

I turned my back and swung my feet to the floor,

Melancholy in such sudden solitude,

Until the voice of resonance

Within informed me,

It is the oneness.